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Living with Age-Related Macular Degeneration in Canada: Resources & Support for Patients

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A team of five eye care professionals stand in formation, smiling and ready to help support those living with AMD

Living with age-related macular degeneration (AMD) can feel overwhelming, but you’re not alone. AMD is a common eye condition primarily affecting Canadians over 55.

There’s no cure for AMD, but many resources and support services exist to help patients live fulfilling lives, including low-vision aids, assistive device programs, early detection eye exams, community events, and AMD therapy.

Whether you’re navigating an AMD diagnosis yourself or supporting a loved one, we can help introduce you to Canadian organizations offering life-changing support and highlighting innovations in AMD therapy.

What Is Age-Related Macular Degeneration?

AMD is a progressive eye disease that affects the macula, the small, central part of the retina responsible for sharp central vision. 

Over time, damage to the macula can lead to blurry vision, difficulty seeing fine details, and even central vision loss. However, AMD doesn’t cause complete blindness, as peripheral vision usually remains unaffected.

There are 2 main types:

  • Dry AMD (the most common) causes gradual vision loss due to thinning of the macula
  • Wet AMD (less common but more severe) causes sudden vision loss due to abnormal blood vessel growth under the retina

How Do You Cope with Age-Related Macular Degeneration?

Coping with AMD starts with education, adaptation, and finding supportive tools and community. Knowing the limitations of AMD can help you adjust daily tasks and find effective assistive technologies. 

Regular eye exams can help monitor your vision and manage the condition effectively.

What Help Is Available for People with Macular Degeneration?

Help comes in many forms, such as connecting with support networks, adopting visual aids, or exploring treatment options. Canada offers a range of resources to empower AMD patients, from professional guidance to emotional and lifestyle support.

Canadian Organizations & Support Networks

Some exemplary organizations provide essential resources to assist those living with AMD.

Fighting Blindness Canada (FBC)

Who they are: FBC is Canada’s leading vision research organization.

How they support people with AMD: FBC funds progressive research, from understanding eye diseases like AMD to exploring new treatment breakthroughs. It also offers engaging awareness campaigns and webinars tailored to AMD patients.

Resources: FBC provides patient toolkits, access to specialists, and educational webinars on AMD management strategies.

Canadian National Institute for the Blind (CNIB)

Who they are: CNIB is a national nonprofit dedicated to helping people with vision loss lead independent lives.

How they support people with AMD: CNIB offers numerous services, including vision rehabilitation, career training, and independent living workshops.

Resources: The CNIB SmartLife program introduces tools like magnification devices, screen readers, and other life-enhancing technologies.

BrightFocus Foundation

Who they are: BrightFocus is a global nonprofit organization that supports research and public education efforts to combat diseases of the mind and sight, including AMD.

How they support people with AMD: BrightFocus offers many patient-focused resources on managing AMD and living a healthier lifestyle.

Resources: BrightFocus shares informative guides, podcasts, and access to free research reports on AMD breakthroughs are highlights.

Roche Canada

Who they are: A pharmaceutical leader championing AMD therapy.

How they support people with AMD: Roche Canada is heavily invested in medical innovations, including injectable treatments for wet macular degeneration.

Resources: Eye care professionals partner with Roche for early intervention strategies and to share AMD treatment advancements.

HealthLink BC

Who they are: A government-supported service providing health-related guidance to BC residents.

How they support people with AMD: HealthLink BC’s 8-1-1 phone line and website offer access to nurses and dietitians knowledgeable about AMD-specific concerns.

Resources: Nutritional advice, lifestyle recommendations, and referrals for low vision services are available.

Key Areas of Support for Those Living with AMD

Regular monitoring of eye health and the use of assistive technologies for managing AMD can significantly enhance your quality of life.

1. Early Detection & Regular Eye Exams

Early detection is key to managing AMD and protecting functional vision. Schedule regular eye exams to monitor your condition and detect progression that could require treatment adjustments. 

2. Low Vision Aids

Low vision aids can dramatically improve your quality of life, including:

  • Magnifying glasses
  • Handheld electronic magnifiers
  • Large-print books
  • Computer screen readers

A good place to start is assessing your needs with the CNIB SmartLife program.

3. Healthy Lifestyle

Lifestyle changes can positively impact AMD progression, including:

  • Eating a diet rich in leafy greens, omega-3 fatty acids, and antioxidants. 
  • Quitting smoking, which is directly linked to AMD progression 
  • Wearing 100% UV protection sunglasses to protect your eyes from sun damage

4. Support Groups & Community Events

Support groups can provide emotional solace and practical tips for living with AMD. Organizations like FBC and CNIB host community meet-ups and online forums, uniting AMD patients and caregivers to share their journeys and build meaningful connections.

MacuMira: Therapy for Dry Macular Degeneration Disease

An optometrist uses a model of an eyeball to explain to a senior patient how AMD affects the eye and how MacuMira can help

MacuMira is Canada’s first clinically proven and regulatory-approved treatment for dry AMD. It’s an innovative therapy that addresses the unmet needs of dry AMD patients, as few clinical treatments currently exist.

How Does MacuMira Treat Age-Related Macular Degeneration?

MacuMira can target the root causes of dry AMD using a breakthrough formula designed to slow macular degeneration and alleviate symptoms. Clinical trials suggest it could improve vision clarity while reducing the risk of progressing to late-stage macular degeneration.

If you’re interested in exploring new treatment options for AMD, contact us today to see if MacuMira is right for you.

Empower Yourself with Resources and Support

Living with AMD doesn’t mean giving up on the activities and independence you love. You can adapt and thrive with resources, support systems, and access to treatment options like MacuMira.

At Maple Ridge Eye Care, we proudly provide MacuMira. We’re committed to empowering you with options to take control of your eye health. Contact us today to see how we can help support you with AMD.

Written by Dr. M. Hurlbert

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